Episodes
May 20, 2024
My Life Battling Sleeping Beauty Syndrome (KLS) | Bethany's Incredible Story
Have you heard of Kleine Levin Syndrome (KLS) or "Sleeping Beauty Syndrome"? In this captivating episode of The Medical Maze podcast, we sit down with Bethany, who bravely shares her journey living with this extremely rare c…
May 7, 2024
The Journey of Diagnosis: Understanding Jordan Syndrome
Join us on a fascinating journey as we delve into the world of Jordan syndrome with Michelle and her daughter. Discover the unique challenges and triumphs faced by individuals living with this ultra-rare neurological disorde…
April 25, 2024
Donate Life Month! Revisit with Molly!
Join us for an inspiring discussion with Molly, a living liver transplant recipient, as she shares her journey during Donate Life month. Find out how a close friend changed her life through organ donation and learn how you c…
April 22, 2024
April is Autism Awareness/Acceptance Month: A Father's Powerful Story of Severe Autism
As April comes to a close, we at The Medical Maze podcast honor Autism Awareness/Acceptance Month with a raw and unflinching look at the often misunderstood world of severe autism. Join us as we sit down with Phil, the fathe…
March 13, 2024
My Son Has a Rare Brain Cancer No One's Heard Of
In this powerful and moving episode of The Medical Maze podcast, host Don-Ellen Ray has an intimate conversation with her cousin Brooke Abner about her son Jackson's courageous battle with a rare brain tumor called Pilomyxoi…
Feb. 20, 2024
She Lives with Razor Blades in Her Blood: One Woman’s Raw Story of Battling Sickle Cell Disease
Can you imagine living every day with shards of glass slicing through your veins? That’s the agonizing reality for my courageous guest Cameron, who shares her deeply personal story of fighting sickle cell anemia since birth.…
Feb. 5, 2024
I Can't Have Protein or My Brain Stops Working: Living with PKU
We speak with Dan Ellmer, who was diagnosed with the rare inherited metabolic disorder phenylketonuria (#PKU) as a child. He shares his remarkable story of living with this condition that causes intellectual disability if un…
Nov. 6, 2023
Living with a Rare Muscle Wasting Disease - Inclusion Body Myositis
Watch Jim Mathews share his personal perspective on inclusion body myositis (IBM), a rare muscle-wasting disease. He explains common misdiagnoses like ALS, details on IBM's gradual effects, information on clinical trials and…
Oct. 22, 2023
I Emit Chemicals That Make People Sick?! | Bizarre Condition Causes Severe Allergic Reactions
Miguel shares his struggle with an extremely rare condition that causes him to emit chemicals from his skin that trigger severe allergic reactions in others. He describes living with this little-known syndrome called PATM (P…
Oct. 1, 2023
I Had My Stomach Removed at 26 Due to Rare Cancer - My Incredible Survival Story with FAP
Rosa M. Rodriguez shares her incredible story of surviving stomach cancer and living without a stomach since age 26. Rosa was diagnosed with the rare genetic disease FAP (Familial Adenomatous Polyposis) at age 12, requiring …
Sept. 17, 2023
My Son's Rare Autism | A Parent's Raw Journey Through the Silent Struggle
We uncover the heartbreaking and isolating reality of parenting a child with severe autism and developmental delays. Hear the raw truth from Phil, father to an 11 year old nonverbal son, as he shares their painful story of v…
Sept. 4, 2023
When Your Own Body Turns Against You: A Sarcoidosis Story
Sarcoidosis is a mysterious condition that can strike any organ in the body. It causes tiny inflammatory granulomas that wreak havoc. Terri describes the confusing, relentless symptoms that plagued her for years before final…
Aug. 22, 2023
Her Rare Disease Is Silently Destroying Her Liver – Can You Save Her Life?
Molly was diagnosed with primary sclerosing cholangitis (PSC) at just 9 years old. Now 29, she urgently needs a liver transplant to survive. This rare disease causes severe liver damage and cirrhosis. Molly's condition is ra…
Aug. 7, 2023
One Woman's Journey Living with Turner Syndrome
In this episode of The Medical Maze, host Don-Ellen interviews Sara about her experiences living with Turner syndrome. This rare chromosomal disorder only affects females and can cause short stature, heart abnormalities, hea…
July 24, 2023
Living with an Undiagnosed Auto-Inflammatory Disease
Alison shares her decades-long struggle living with an undiagnosed auto-inflammatory disease and a myriad of other chronic health conditions. Diagnosed with Crohn's disease at age 7, she began suffering from extreme gastroin…
July 19, 2023
Navigating the Medical Maze
Join Don-Ellen Ray and Phil as they discuss the brand new podcast "The Medical Maze: Decoding Misunderstood Diseases". Learn what the podcast is about and what's to come! #undiagnosedillness #medical #medicalpodcast
July 19, 2023
Millions of Women Have This Disease & May Not Know it: My Story of Living With Lipedema
In this inaugural episode of The Medical Maze" join your host Don-Ellen Ray as she courageously shares her personal journey with Lipedema. Through raw authenticity and vulnerability, Don-Ellen takes us on a profound explorat…
July 2, 2023
The Medical Maze Introduction
In the complex realm of healthcare, where understanding is often obscured, welcome to "The Medical Maze: Decoding Misunderstood Diseases." Join us on an illuminating journey as we navigate through the intricacies of medical …