Videos

Is There a Cure for Sleeping Beauty Syndrome? #kls #sleepingbeautysyndrome #raredisease #medicalpodcast

Living with KLS: The Realities Behind Sleeping Beauty Syndrome #kls #sleepingbeautysyndrom #narcolepsy #raredisease

Understanding the Difference Between Narcolepsy and Sleeping Beauty Syndrome? #narcolepsy #kls #raredisease #sleepingbeauty

Is Jordan Syndrome More Common Than You Think? #jordansyndrome #raredisease #podcast #shorts

The Dangers of Comparing Children's Development Milestones #miestones #rarediseases #podcast

Join us on a fascinating journey as we delve into the world of Jordan syndrome with Michelle and her daughter. Discover the unique challenges and triumphs faced by individuals living with this ultra-rare neurological disorder. Don't forget to hit subscribe for more insightful discussions on medical conditions like this! #medicalpodcast…

Join us for an inspiring discussion with Molly, a living liver transplant recipient, as she shares her journey during Donate Life month. Find out how a close friend changed her life through organ donation and learn how you can make a difference at registerme.org. Subscribe for more heartwarming stories and…

Understanding the Autism Spectrum: Breaking Stereotypes and Promoting Awareness #autism #asd #autismdad #shorts

Have you heard of Kleine Levin Syndrome (KLS) or "Sleeping Beauty Syndrome"? In this captivating episode of The Medical Maze podcast, we sit down with Bethany, who bravely shares her journey living with this extremely rare condition that causes her to sleep for weeks at a time. Bethany discusses the…

As April comes to a close, we at The Medical Maze podcast honor Autism Awareness/Acceptance Month with a raw and unflinching look at the often misunderstood world of severe autism. Join us as we sit down with Phil, the father of 11-year-old Dominic, who bravely shares his family's heart-wrenching journey.…

How My Child's Diagnosis Transformed My Faith #faith #medical #raredisease #shorts

How my Parents Helped Save my Son's Life with Ice Baths #pma #raredisease #disease #medicalpodcast

Understanding the Origins and Traits of a Rare Condition #PMA #raredisease #medicalpodcast

Understanding the symptoms of Sickle Cell #sicklecell #sicklecelldisease #raredisease #medicalpodcast

Owning Your Own Business with Sickle Cell #sicklecell #businessowner #shorts #podcast #raredisease

Coping with Sickle Cell #sicklecell #disease #raredisease #sicklecellanemia

Living with Sickle Cell Disease: A Personal Journey #sicklecell #sicklecelldisease #sicklecellanemia #raredisease #diagnosed #medicalmaze

337,000 People have this RARE Disease #pku #raredisease #illness #shorts #podcast

In this powerful and moving episode of The Medical Maze podcast, host Don-Ellen Ray has an intimate conversation with her cousin Brooke Abner about her son Jackson's courageous battle with a rare brain tumor called Pilomyxoid Astrocytoma. Brooke vulnerably shares the heartbreaking challenges and miraculous triumphs her family has faced…

Can you imagine living every day with shards of glass slicing through your veins? That’s the agonizing reality for my courageous guest Cameron, who shares her deeply personal story of fighting sickle cell anemia since birth. Even the slightest weather change or emotional stress can trigger grueling, week-long hospitalizations filled…

Symptoms of PKU in Children #pku #developmentaldelay #shorts #podcast #raredisease Dan Ellmer, who was diagnosed with the rare inherited metabolic disorder phenylketonuria (#PKU) as a child. He shares his remarkable story of living with this condition that causes intellectual disability if undiagnosed. Dan explains what PKU is, how it's screened…

Understanding PKU. How Missing Enzyme Impacts Protein Breakdown #raredisease #genetics #disability #healthpodcast #chronicillness #invisibleillness #advocacy #epigenetics #publichealth #enzymedisorders

We speak with Dan Ellmer, who was diagnosed with the rare inherited metabolic disorder phenylketonuria (#PKU) as a child. He shares his remarkable story of living with this condition that causes intellectual disability if undiagnosed. Dan explains what PKU is, how it's screened for at birth in some countries, why…

Looking Forward to 2024 #heresto2024 #surgery #newyear #podcast #update #Rarediseases