Rare Disease Causes Liver Damage Primary Sclerosing Cholangitis #raredisease #liver #transplant #PSC #medicalpodcast #livertransplant #organdonation
Molly was diagnosed with primary sclerosing cholangitis (PSC) at just 9 years old. Now 29, she urgently needs a liver transplant to survive. This rare disease causes severe liver damage and cirrhosis. Molly's condition is rapidly deteriorating. She describes living with worsening fatigue, brain fog, and malnutrition as toxins build…
Increasing Awareness for Turner Syndrome #turnersyndrome #medicalawareness #undiagnosed #misdiagnosed
What is Turner Syndrome? Sara tells her story on the latest episode of "The Medical Maze" #turnersyndrome #turners #rarediseases #medicalawareness #medicalpodcast #medicalconditions
There is a Hospital For People Like Me After decades without answers, Alison has a new referral to the National Institutes of Health, which offers hope for finally discovering what auto-inflammatory condition may be behind her myriad of symptoms. #AutoInflammatoryDisease #Undiagnosed #ChronicIllness #CrohnsDisease #Arthritis #Disability #RareDisease #InvisibleIllness #Spoonie #YoungPeopleWithLupus #RheumatoidArthritis…
In this episode of The Medical Maze, host Don-Ellen interviews Sara about her experiences living with Turner syndrome. This rare chromosomal disorder only affects females and can cause short stature, heart abnormalities, hearing loss and other symptoms. Sara shares her journey getting diagnosed as a child, being bullied for her…
It's Now Called an Auto Inflammatory Disease Alison shares her decades-long struggle living with an undiagnosed auto-inflammatory disease and a myriad of other chronic health conditions. Diagnosed with Crohn's disease at age 7, she began suffering from extreme gastrointestinal symptoms and complications that have continued into adulthood. #AutoInflammatoryDisease #Undiagnosed #ChronicIllness…
My Medications Were Undissolved in My Intestines Alison shares her decades-long struggle with mysterious and migrating symptoms that doctors have been unable to diagnose. With conditions like Crohn's disease, arthritis, and an auto-inflammatory disorder, she describes the pain, social challenges, and search for answers. Watch the latest episode of "The…
Never Give Up or Lose Hope #lipedemaawareness #lipedema #medicalpodcast #bodypositivity
Is Lipedema Terminal? #lipedemaawareness #lipedema #lipedemawarrior #medicalpodcast
Alison shares her decades-long struggle living with an undiagnosed auto-inflammatory disease and a myriad of other chronic health conditions. Diagnosed with Crohn's disease at age 7, she began suffering from extreme gastrointestinal symptoms and complications that have continued into adulthood. However, Alison also experiences many perplexing symptoms unrelated to her…
Being Misdiagnosed with Lymphedema #lipedemaawareness #lipedema #lymphedema #medicalpodcast
Lipedema Not Only Effects You Physically, but Mentally as Well #lipedemaawareness #lipedema #medicalawareness #medicalmaze
In this inaugural episode of The Medical Maze" join your host Don-Ellen Ray as she courageously shares her personal journey with Lipedema. Through raw authenticity and vulnerability, Don-Ellen takes us on a profound exploration of the challenges, triumphs, and lessons learned from living with this often misunderstood condition. Don-Ellen recounts…
Join Don-Ellen Ray and Phil as they discuss the brand new podcast "The Medical Maze: Decoding Misunderstood Diseases". Learn what the podcast is about and what's to come! #undiagnosedillness #medical #medicalpodcast
